Infection

It’s been what, 7 months? I haven’t written because I haven’t had much to write about. But, 7 months later, 9 since my transplant, there is some worry that the cancer has already returned. New pain in my arm. Activity on my MRI. I’m being treated with radiation, but will know more after my doctor’s appointment on Monday in terms of what this means in the big picture. I suspect he will want to do another bone marrow biopsy, as that is really the definitive measure.

But, that’s not what has been invading my dreams this past week. Continue reading

You Cannot Compare Burdens

Since my diagnosis, in the course of talking to friends and family, I have often heard the phrase, “It’s nothing compared to what you are going through.” My response has always been, “You cannot compare burdens. No matter what the load, the heaviest burden a person has to carry is theirs alone, and the weight of the load of the person next to them is irrelevant.” Continue reading

Two Books I Highly Recommend for MM Patients (or their caregivers)

Yesterday I received (and proceeded to read the whole thing), Living with Multiple Myeloma: Practical advice from a fellow cancer survivor for myeloma patients, their families, and friends. It is a very well written book by a fellow myeloma survivor and medical correspondent, Pat Killingsworth. Continue reading

Steps on How to Save a Life

1. Register with the National Bone Marrow Registry (requires some paperwork and a cheek swab.)

2. Wait.

3. Wait.

4. Step up when your name is called. Donation is free, all expenses are reimbursed, and it is about as painless as a it can be (a few needles, then you’re done).

5. You are now a life saving hero.

Seriously, it’s that easy.

Click here to go to their page for more info on how to join. Help save a life.

New Year’s Blessings

And, Happy “Birthday” to me! Today marks two months since my transplant day. It’s hard to believe it’s been two months since I felt so miserable – it both seems like so much longer ago and also like it was just last week. Continue reading

So, It’s Been A While

Yeah, sorry for that. Been up to a lot since I last wrote. I was released from the transplant clinic on the 12th, which was the 12 day after my transplant. Yeah, I kind of rocked that. Continue reading

So Much to Be Grateful For!

Day 8, and I continue to improve. My energy is coming back well, and while I have occasional bouts of nausea and what I like to call “the trots”, they are not too bad or frequent. Continue reading

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