Posted on July 19, 2013 by Sue
It’s been what, 7 months? I haven’t written because I haven’t had much to write about. But, 7 months later, 9 since my transplant, there is some worry that the cancer has already returned. New pain in my arm. Activity on my MRI. I’m being treated with radiation, but will know more after my doctor’s appointment on Monday in terms of what this means in the big picture. I suspect he will want to do another bone marrow biopsy, as that is really the definitive measure.
But, that’s not what has been invading my dreams this past week. Continue reading
Filed under: Family, Multiple Myeloma, Support Systems | Leave a comment »
Posted on January 14, 2013 by Sue
Since my diagnosis, in the course of talking to friends and family, I have often heard the phrase, “It’s nothing compared to what you are going through.” My response has always been, “You cannot compare burdens. No matter what the load, the heaviest burden a person has to carry is theirs alone, and the weight of the load of the person next to them is irrelevant.” Continue reading
Filed under: Support Systems | Tagged: Faith, friends, kindness, TBP | 1 Comment »
Posted on January 11, 2013 by Sue
Yesterday I received (and proceeded to read the whole thing), Living with Multiple Myeloma: Practical advice from a fellow cancer survivor for myeloma patients, their families, and friends. It is a very well written book by a fellow myeloma survivor and medical correspondent, Pat Killingsworth. Continue reading
Filed under: Multiple Myeloma, Resources, Stem Cell Transplant, Support Systems | Tagged: blogs, cancer, multiple myeloma, reading, SCT, support | Leave a comment »
Posted on January 9, 2013 by Sue
1. Register with the National Bone Marrow Registry (requires some paperwork and a cheek swab.)
4. Step up when your name is called. Donation is free, all expenses are reimbursed, and it is about as painless as a it can be (a few needles, then you’re done).
5. You are now a life saving hero.
Seriously, it’s that easy.
Click here to go to their page for more info on how to join. Help save a life.
Filed under: Stem Cell Donation, Stem Cell Transplant | Tagged: Be a Donor, National Registry, SCT | Leave a comment »
Posted on January 1, 2013 by Sue
And, Happy “Birthday” to me! Today marks two months since my transplant day. It’s hard to believe it’s been two months since I felt so miserable – it both seems like so much longer ago and also like it was just last week. Continue reading
Filed under: Cancer, Family, Multiple Myeloma, Peace, Stem Cell Transplant, Support Systems, TBP | Tagged: blessings, bone marrow biopsy, cancer, Faith, family, friends, multiple myeloma, SCT, TBP | 6 Comments »
Posted on December 16, 2012 by Sue
Yeah, sorry for that. Been up to a lot since I last wrote. I was released from the transplant clinic on the 12th, which was the 12 day after my transplant. Yeah, I kind of rocked that. Continue reading
Filed under: Cancer, Family, Multiple Myeloma, Stem Cell Transplant | Tagged: cancer, family, friends, multiple myeloma, SCT | 2 Comments »
Posted on November 9, 2012 by Sue
Day 8, and I continue to improve. My energy is coming back well, and while I have occasional bouts of nausea and what I like to call “the trots”, they are not too bad or frequent. Continue reading
Filed under: Multiple Myeloma, Stem Cell Transplant, Support Systems, TBP | Tagged: cancer, Captain America, Faith, family, Jukebox The Ghost, multiple myeloma, SCT | 7 Comments »