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  • Who Is Sue?

    Sue

    Sue

    I'm a 43 year old Multiple Myeloma patient. I was treated for a solitary plasmacytoma in '09, and progressed to MM in the spring of 2012. I had a successful Stem Cell Transplant in November of that year, and have been on maintenance chemotherapy since, relapsing at the end of 2014. I served for several weeks at Ground Zero following the 9.11 attacks, and have done some pretty neat things since then, too. Getting cancer isn't one of them.

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  • Release from Transplant Clinic

    The Big Day, EstimatedNovember 15th, 2012
    Hoorah! I rocked that bitch and got out on the 12th!
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Putting on the War Paint

Well, a lot has (and a lot hasn’t) happened since I last wrote. We met with the oncologist (he comes highly recommended), and got a clearer picture of what’s going on. Continue reading

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The Accidental Update

So, i had my bone marrow biopsy on Monday. It was much ado about nothing, if you want my opinion. There were i.v.’s, fall risk bracelets, sedatives that didn’t work, impatient nurses – the whole shebang. All for the same procedure that a N.P. did in her office with my drawers down the last time I had it done. Continue reading

Gifts Aren’t Always Wrapped in Pretty Paper

Today was a hard day. More on that later, like, in another post. It sucked, but in The Big Picture (henceforth referred to as “TBP”) I really don’t have too much to bitch about and, as always, I am grateful for that.

But, tonight. Oh, tonight – something truly incredible happened to me. (Actually, several pretty cool things happened, but one seems like an epiphany of sorts, so that’s what I’ll be focusing on here.) Continue reading

Bone Marrow Biopsy and Aspiration—What to Expect

Well, the more I have thought about my upcoming procedure, the more it has bothered me. Never mind that my father (who loves me very much, but is still learning about filters when it comes to this stuff) also called and pointed out the obvious to me:  this is not the same procedure I underwent the last time I was diagnosed. Continue reading

Getting Back to “Normal”

I got my stitches out from my biopsy yesterday. Eye looks good (for an eye with a tumor in it that’s been flayed open). I would like to throw a shout out to the doc that did the surgery, as he and his team were totally awesome. Continue reading

The Weirdest Thing Just Happened to Me (Again)

I may not cross post this one to the Facebooks or Twitterz, but, since one of the things I am hoping will come out of this blog is a safe place for me to share as well as other people to come who are facing Myleoma (or other scary stuff), I will share a most bizarre thing that happened to me this morning. Continue reading

Here We Go Again

I had my first oncologist appointment (round two style) yesterday. It went pretty much as I expected it would. While we know that the tumor in my eye tissue is a Plasmacytoma, there is no way of knowing yet if it is isolated or if my disease has progressed to Multiple Myeloma (that is, throughout my bone marrow or tumors elsewhere in my body). So, next up is a bone marrow biopsy Continue reading