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  • Who Is Sue?

    Sue

    Sue

    I'm a 43 year old Multiple Myeloma patient. I was treated for a solitary plasmacytoma in '09, and progressed to MM in the spring of 2012. I had a successful Stem Cell Transplant in November of that year, and have been on maintenance chemotherapy since, relapsing at the end of 2014. I served for several weeks at Ground Zero following the 9.11 attacks, and have done some pretty neat things since then, too. Getting cancer isn't one of them.

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  • Release from Transplant Clinic

    The Big Day, EstimatedNovember 15th, 2012
    Hoorah! I rocked that bitch and got out on the 12th!
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Here We Go Again

I had my first oncologist appointment (round two style) yesterday. It went pretty much as I expected it would. While we know that the tumor in my eye tissue is a Plasmacytoma, there is no way of knowing yet if it is isolated or if my disease has progressed to Multiple Myeloma (that is, throughout my bone marrow or tumors elsewhere in my body). So, next up is a bone marrow biopsy Continue reading

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I Don’t Believe in Coincidences

Just a quick update, as it has been some time since my last post. My cancer is back. I am 39. I have Myeloma (maybe Multiple, not sure yet). Again. And, in spite of the fact that I stepped up when my country asked me to – and more than likely developed cancer as a result – my country is nowhere in sight when it comes to stepping up to help me deal with the personal and financial cost of my illness. Right now I have a tumor in the soft tissue in my eye. I will find out in the next few weeks if I have tumors elsewhere, and what course of treatment is best for me. In the meantime, my eye is deformed and the tumor continues to grow aggressively. I have limited sight out of my eye. I (and by “I”, I mean my father) just spent over $3,000 to have the tumor biopsied (and my eyelid flayed open). Oh, and I might die from this (but I’m getting used to dealing with that anxiety).

Not Surprising

It’s not surprising that, less than one week after the ten year anniversary of the 9/11 attacks, I can’t find one article printed in the last week regarding the health (and lack of health care) of 9/11 first responders.  There were a deluge of said articles a week ago.  Now, there are none.  Don’t worry, though, there are still plenty of us first responders living with – and dying from – various diseases we most likely developed due to our exposure to toxins in and around Ground Zero.

Have you seen any articles since the 11th regarding the link between serious illness and exposure of first responders???  If you have, please feel free to share them.

A Red Crosser Remembers Serving on 9/11/2001

My friend wrote this remembrance of her time and service immediately following the attacks on 9/11.  It is a very honest, and accurate accounting, and I am both grateful to her for her service, as well as her eloquence in her recounting it.

A Red Crosser Remembers Serving on 9/11/2001.

Video – Breaking News Videos from CNN.com

Video – Breaking News Videos from CNN.com.

New Docs Detail How Feds Downplayed Ground Zero Health Risks – ProPublica

They knew we were at risk.  They let the bureaucrats make the decisions, and many have and will pay for it with their livelihoods and lives.  WE DESERVE ACCESS TO HEALTH CARE NOW.

Dioxin, a pollutant that can cause cancer, damage the immune system and lead to developmental problems, is most harmful when absorbed through food. But it can also cause harm when inhaled. OSHA discussed the alarming test results internally:
Continue reading

St. John’s sued by sick 9/11 workers who used its building near Ground Zero – NYPOST.com

This is the Respite Center where I worked…

St. John’s sued by sick 9/11 workers who used its building near Ground Zero – NYPOST.com.