Infection

It’s been what, 7 months? I haven’t written because I haven’t had much to write about. But, 7 months later, 9 since my transplant, there is some worry that the cancer has already returned. New pain in my arm. Activity on my MRI. I’m being treated with radiation, but will know more after my doctor’s appointment on Monday in terms of what this means in the big picture. I suspect he will want to do another bone marrow biopsy, as that is really the definitive measure.

But, that’s not what has been invading my dreams this past week. Continue reading

You Cannot Compare Burdens

Since my diagnosis, in the course of talking to friends and family, I have often heard the phrase, “It’s nothing compared to what you are going through.” My response has always been, “You cannot compare burdens. No matter what the load, the heaviest burden a person has to carry is theirs alone, and the weight of the load of the person next to them is irrelevant.” Continue reading

Two Books I Highly Recommend for MM Patients (or their caregivers)

Yesterday I received (and proceeded to read the whole thing), Living with Multiple Myeloma: Practical advice from a fellow cancer survivor for myeloma patients, their families, and friends. It is a very well written book by a fellow myeloma survivor and medical correspondent, Pat Killingsworth. Continue reading

New Year’s Blessings

And, Happy “Birthday” to me! Today marks two months since my transplant day. It’s hard to believe it’s been two months since I felt so miserable – it both seems like so much longer ago and also like it was just last week. Continue reading

So Much to Be Grateful For!

Day 8, and I continue to improve. My energy is coming back well, and while I have occasional bouts of nausea and what I like to call “the trots”, they are not too bad or frequent. Continue reading

Day -2

With transplants, Day 0 is the day you receive your stem cells, and then you count up from there.

We got down here to San An around 9 last night. We didn’t go to the store, we were too tired. Today, we were at the hospital at 8am, and got “home” around 4 or so. LONG day! Continue reading

Bone Marrow Biopsy and Aspiration—What to Expect

Well, the more I have thought about my upcoming procedure, the more it has bothered me. Never mind that my father (who loves me very much, but is still learning about filters when it comes to this stuff) also called and pointed out the obvious to me:  this is not the same procedure I underwent the last time I was diagnosed. Continue reading